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My sister-in-law reminded me that I might not be chosen but I was 18 and the implication of death never really occurred to me. I believe the review process was harder on my family than it was on me, because they worried about the alternative.
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The Seattle Artificial Kidney Center was the first out-of-hospital dialysis centre in the world and it only had about two dozen dialysis beds. The committee was looking for people who could recover and go on to work or be contributing members of society. Luckily, my mom was a social worker for the state of Washington and had gotten double coverage with insurance, for this reason. That is a lot of money today, not to mention how much it was in 1966. However, I did not know until recently that my family had to have adequate insurance coverage or put up $30 000. My mother and older brothers had to meet with the social worker and the financial people. It included a visit with a psychiatrist and psychological testing. We called it ‘The Life and Death Committee.’Īll patients being reviewed for dialysis in Seattle, in those days, before Medicare paid for treatments, went through this process. I also began my interviews with the Admissions and Policy Committee at the Seattle Artificial Kidney Center. I returned home and continued college at the University of Washington, and then transferred to Seattle University, which was just three blocks from the Kidney Center. Vomiting in the planter boxes outside of my physics class became old after a while.
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By February 1966, I had become too sick to stay in school. In the fall of 1965, I went off to college at the University of Arizona in Tucson, joined the Pi Beta Phi sorority, worked at my studies, went to parties and dated the boys. I always knew I felt better when I watched my salt intake. As a girl competing with brothers while growing up, I never tired of saying, ‘I beat the boys.’ Back then I never worried or thought much about my illness, except to be careful of my diet and to follow the doctor's instructions. At the age of 15, I won a first-place trophy snow skiing in a coed slalom race. I loved water skiing in the summers on my custom made slalom ski. I entered the 8th grade the following autumn and stayed active throughout junior and senior high school.
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Children visitors were not allowed in the hospital in those days, and I remember waving at my younger brother, Charlie, through the windows of the hospital. Eventually, I was awake enough to ask my mother to hold open my swollen eyes so that I could see her. I was semi-conscious for several days following this. I was there for many weeks and given high doses of prednisone and then infused with nitrogen mustard to see if it would eradicate the disease.
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The doctors felt the cause was multiple stings from a swarm of yellow jackets I had encountered the previous summer while on a camp hike in the Cascade Mountains. Biopsy showed that I had Bright's Disease or glomerulonephritis, as it is called now. On December 26, I entered Children's Hospital in Seattle for further diagnostic tests and treatment if needed. I did my best to keep busy by reading Charles Dickens, Jules Verne and Nancy Drew mysteries. It was one of the rare times I saw all my friends, as I was usually alone in the house while my mother was at work. In October, my friends gathered around my bed to celebrate my 12th birthday. In that era doctors thought that jostling the kidneys would do further harm, so I was sent to bed until Christmas and only arose to use the bathroom. I was a relay runner in school and races became hard to run. I had just started 7th grade in September 1959 when brushing my thick wavy blonde hair became difficult. My father always said to me, ‘Nancy, you can do anything if you want it badly enough.’ Other things he said were, ‘Don't carry a lazy man's load’ and ‘Save time by doing it right the first time.’ These examples have served me well over the years. My mother provided a stoic example of sticking with something until it was done. The males in the family had no time for that. I could not hold back or complain if I wanted to be included in the family activities. I learned to fish, shoot, play baseball, water ski and snow ski. My family activities centred around my three brothers and my father. I'm told I was a curious and active child.